Motorcycle Accessibility for People with Paraplegia: The Essential Role of Peer Support

Motorcycling is more than just a mode of transportation; it is a true way of life, a passion (Scol, 2017). It is a passion that is not without risk, where an accident can happen at any moment and may mark the breaking point between the rider and his passion. Five men who became paraplegic following a motorcycle accident shared their life stories with us, recounting how they were eventually able to get back in the saddle despite their limitations. We therefore followed the Planète Handisport association to understand how they use their experiences and expertise to enable people with reduced mobility (PRM) to once again enjoy the experience of riding a motorcycle on a track under “handi-capable” conditions. It is thanks to their determination and mutual support that they are now able to return to the racetracks, with some even competing alongside “able-bodied” riders.

@PHS Association

“Exactly six years to the day after his motorcycle accident, Emmanuel SENIN (President of the Planète Handisport – PHS association) is back on a motorcycle”[2].

Following a motorcycle accident that left him paraplegic, Emmanuel Senin decided to get back in the saddle on August 8, 2020, at the Alès circuit. A month later, he founded Planète Handisport (PHS), France’s first disabled sports mechanics center, in Alès. For two years now, hundreds of people with limited mobility (those with lower or upper limb amputations, paraplegics, hemiplegics, etc.) have been getting back on motorcycles thanks to this organization. This achievement challenges the stigma associated with disability and demonstrates that nothing is impossible when the right adaptations and personalized support are in place.

 “For a long time, it was taken for granted that certain ‘dangerous’ spaces should remain off-limits to them and that ‘people with disabilities’ should confine their physical activities to places that were specially prepared, adapted, and ‘sterilized’” (De Léséleuc, 2017, p. 4). Motorcycle tracks were notably among these so-called “dangerous” spaces, where access for people with disabilities seemed unimaginable. “The environment thus becomes a factor to be taken into account in the production of disability” (Reichhart, Lomo Myazhiom, 2020, p. 83). Reichhart clarifies the term “environment” by stating that it “is to be taken in the broadest sense, and also encompasses, in a combined and complementary manner, human assistance and intervention, as well as equipment and technological innovation” (Reichhart, 2020, p. 8). A line of thinking already developed by Fougeyrollas in 1998 and his MDH-PPH model[3] introducing the idea that “environmental factors present in a person’s or a population’s environment can prove to be facilitators or obstacles”[4].

In this sense, people with disabilities must address both human and technological factors in order to navigate a society based on an “able-bodied-centered” model, where the norm is an able-bodied person (Probst et al., 2016). This leads us to ask: how has it been possible to make motorcycling accessible to people with reduced mobility (PRM)?

First and foremost, this is the story of a man, Stéphane Paulus, who became paraplegic following a motorcycle accident in 2003 and decided to reconnect with his passion. To do so, he developed an entire technological system to adapt his motorcycle to his disability. But this is just one example among many that came before him. Indeed, many have drawn on their own technical knowledge to adapt the equipment to their abilities. These men took on the role of true “tinkerers,” making modifications to their gear themselves. The early days of para-motorbiking are thus characterized by “resourcefulness ” (Perera, Beldame, Soulé, 2020, p. 150). More broadly, in the history of the para-sports movement, technical innovation in sports equipment generally involves adaptations “based on a logic of mutual aid and adaptation through DIY” (Perera, Beldame, Soulé, 2020, p. 151). For example, in the early days of the all-terrain wheelchair in France, pioneers “initially designed and built a cross-country ski sled ‘using pieces of pipe to weld together.’ The equipment was then tested, with ‘occasional failures,’ on the peaks of Tignes.” ” (Le Roux, Galy, Perera, 2018). 

Through trial and error, “technical developments appear essential to gradually move toward a more universalist perspective, ‘for all’” (Issanchou, Perera, 2020, p. 10). The environment is a complex and evolving system that consequently requires the use of technology as a tool to promote accessibility. It enables people to “get back in the saddle” safely, despite their disability. But this requires proficiency with the adapted equipment, and more specifically, with riding a motorcycle.

Before their accidents, some individuals had already incorporated technology through a motor sport described as “highly technological,” such as motorcycling: “Becoming one with a machine to be the fastest is part of their biker habitus” (Issanchou, Perera, 2020, p. 57). By incorporating the dynamics of the motorcycle, they open up “new possibilities for engagement, overcoming challenges, and perceiving disability” (Perera, Villoing, Galy, 2020, p. 12). We then speak of individuals who are “capable in a different way,” according to Nuss (2008, p. 64). “Indeed, the disabled body conveys a fragility that constructs power dynamics in its care, requiring multiple resources to make it ‘handi-capable’” (Perera, Villoing, Galy, 2020, p. 12). Their pre-accident experiences riding motorcycles now facilitate their transition to “handi-capable” status, allowing them to leave their limitations behind (Andrieu, 2017). They serve as proof, for all people with reduced mobility, that it is possible to get back on a motorcycle.

In addition to purely technical aspects, human facilitators step in where technology reaches its limits. Beyond able-bodied individuals, a mechanism of mutual aid and solidarity among peers is created; this is referred to as “peer support.” It is in the field of mental health that Bernard Durand defines this term as a way to “restore hope to those still suffering from the illness and help them regain the capacity to act (empowerment) so they can engage in a recovery process” (2020, p. 8). In our context, this “peer support” involves accompanying the individual through the process of getting back on the motorcycle following the accident.

Thus, it is the synergy between human and technological aids that now makes it possible for people with limited mobility to ride motorcycles on a track. Nevertheless, according to Hamonet (2016, p. 61), drawing on Pierre Minaire’s statement that “Disability is not a constant, but a variable,” we must recognize that “to shift the ‘slider’ in the right direction, we must first act on the situations themselves to make them less ‘disabling .” Thus, these human and technological facilitators can also turn out to be obstacles. The nature of these facilitators/obstacles and the way they are used still needs to be defined. This is why we decided to follow the PHS association and the development of its mechanical division in order to understand: How does the PHS association enable people with reduced mobility to get back on a motorcycle in a tailored setting involving an adapted motorcycle and ongoing support through peer assistance?

Methodology

To address our research question, we analyzed the various experiences of people with paraplegia who decided to get back on a motorcycle through a program organized by the association “Planète Handisport” (PHS). Our research was based primarily on semi-structured interviews, which were guided and supplemented by participant observation conducted at a motorcycle track in Alès.

Our qualitative research began with a meeting with the PHS association at the Alès racetrack on February 25, 2022. During this event, we were able to observe and participate in the first return to racing for Jean-Pierre Roux (a paraplegic for 11 years), a member of the association, as well as in the training session of professional driver Benoit Thibal (a paraplegic for 14 years). About ten volunteers were present, as well as the mechanic, Laurent Tronnet (a paraplegic for 26 years), and the association’s president and founder, Emmanuel Senin (a paraplegic for 28 years). This initial field phase, conducted as participant observation, serves a dual purpose. It not only allows us to make contact with potential interview subjects but also to build rapport with them, which can only facilitate future interactions. Our participation in various tasks, such as transferring the rider from the wheelchair to the motorcycle, or keeping the motorcycle balanced during the start and finish of the rider with a physical disability, immersed us in the process of getting back on the motorcycle. This engaging experience, consisting of observations and verbal interactions, was extensively drawn upon during the semi-structured interviews to contextualize our remarks.

These interviews were conducted with five paraplegic men, all of whom were motorcyclists involved in accidents and had decided to get back on a motorcycle at least once with the team from the PHS association: Emmanuel Senin, Laurent Tronnet, Jean-Pierre Roux, Benoît Thibal, and Thomas Vergnet (a paraplegic who has been disabled for 13 years), who is in charge of wakeboarding and water skiing activities. All interviews, lasting an average of 45 minutes, were conducted via videoconference except for those with Thomas Vergnet and Emmanuel Senin, for whom the meeting took place directly at their homes. The decision to use videoconferencing for four of them, due to their geographic location, introduced certain biases, such as potential inaudible segments, pauses, and the inability to read body language, etc. (Seitz, 2016). Nevertheless, the initial contact made during our visit on February 25, 2022, facilitated understanding of the discussions. The interviews followed a guideline based on general themes centered on: the encounter, the motorcycle, the accident, and the process of getting back on the bike. The goal was to understand the journey that led them to choose to ride a motorcycle again.

Technology as a facilitator of the motorcycle recovery process

When we brought up the topic of accessibility, all of our interviewees agreed that real changes have been implemented since their accidents. For Thomas V. (a paraplegic who has been disabled for 13 years), the environment around us “is not designed for people with disabilities.” Adaptations are thus the result of technological and human progress, in his view: “Passionate people who have dedicated their time and energy to ensuring that, thanks to assistive technology, disability is as manageable and as less burdensome as possible.” He continues, acknowledging the major role of technology: “So yes, accessibility and assistive technology go hand in hand. So technology does play a role.” “In this context, technology is designed in relation to a body it seeks to repair, compensating for the consequences of a disability resulting from an impairment” (Reichhart, 2020, p. 8). Upon closer examination of the handbike, technology emerged as a central element in its evolution. In the early days of the handbike, Stéphane Paulus, a pioneer of the movement in France, developed “a system of an electrically retractable center stand controlled via a handlebar switch”[5]. Laurent T., a mechanic at the PHS mechanics division, drew inspiration from these modifications and adapted the first motorcycle of Stéphane Paulus, a professional PWD rider and PHS motorsports instructor: “I took a look at how the motorcycles were modified, and then, for Benoît’s motorcycle, it’s a modification that has to suit Benoît.” He thus places a high priority on the “reliability” and accessibility of all his modifications: “for the association, these are adaptations that must suit everyone.” As De Fonclare and Bonnin (2007, p. 43) so aptly put it: “there are as many disabilities as there are people with disabilities.” Technical and technological development must therefore meet a diversity of needs (Reichhart, 2020, p. 8). This is why there is “a motorcycle adapted for people with paraplegia and a motorcycle adapted more for amputees,” explains Emmanuel S., president and founder of the PHS association. Adaptations are made according to the needs and specificities of individuals.

It began as a grassroots movement made up primarily of disabled athletes. The era of “resourcefulness” had begun. These were true “tinkerers” who adapted equipment to make it accessible to as many people as possible. Technological and equipment advancements thus made it possible, at first, to adapt the motorcycle to the individual. Benoît T. talks about modifications: “There are mountain bike clipless pedals to hold the feet in place, a strap to keep the knees against the fuel tank, an electric shifter with buttons to change gears, and a thumb-operated rear brake, plus a few modifications to the fuel tank to make the riding position more comfortable.”

Nevertheless, these modifications require technical skill on the part of the rider. Benoît T., a professional PMR rider and motorsports instructor at PHS, explains that “you have to feel comfortable on the motorcycle and become one with it if you want to perform well and enjoy yourself.” Vannier (2020, p. 11) identifies in this idea the process of embodiment that links the rider to the dynamics of the “motorcycle” as an object. In this sense, “technology can be a facilitator, that is, a condition that facilitates accessibility” (Reichhart, 2020, p. 10) only if technical riding skills have been acquired.

But technology alone cannot overcome all the barriers society imposes on it. According to Laurent T., making motorcycles accessible to people with disabilities could have been possible much earlier: “Technology is one thing, but I think it’s more people’s mindset that has evolved rather than the technology itself. Ten years ago, the equipment already existed, and for example, the FFM didn’t want to hear about people with disabilities. […] Because I think that psychologically, people weren’t ready to put a ‘disabled person’ on a motorcycle, on a track. […] They weren’t ready to face the fear or the risk of putting people with disabilities on the track.” One might then ask how these barriers were overcome and how they enabled the growth of motorcycling for people with disabilities?

Educating and proving oneself to address disability: a race toward "able-bodied" competition

Since 2013, when Stéphane Paulus was denied his license application by the FFM (French Motorcycling Federation), a real struggle has begun in the face of a society’s reluctance to move beyond a “able-bodied-centric” perspective. Limited by his disability, Benoît T. says he has to “prove twice as hard that we belong among able-bodied riders.” Through his achievements in competitions, he elevates the status of riders with reduced mobility and lends credibility to their ability to compete on the track. He embraces the status of “handi-capable” (Andrieu, 2017) and reignites hope among all people with reduced mobility that they might one day get back on a motorcycle. But he doesn’t stop there; he goes even further by educating “able-bodied” people so they can better understand disability. During introductory sessions on the motorcycle track, he serves as an instructor for all riders, whether “able-bodied” or “disabled.”

As far as he’s concerned, there’s no difference between a “disabled” rider and an “able-bodied” rider: “I don’t make any distinctions once we’re on the bike—we’re all riders.” “This is the case, for example, with the standardization of assistive devices for competition, which, by presenting a sporting result that would be produced solely by physical differences, overlooks all the work of adjustment and adaptation (Winance, 2010) that is nevertheless necessary for achieving athletic performance with assistive devices” (Issanchou, Perera, 2020, p. 20). Only the use of the legs distinguishes an “able-bodied” rider from a “disabled” rider. And Laurent T. affirms this when speaking of Benoît T.: “He has his bike, he mounts it differently, he has a different position, but he is a rider. Drivers with physical disabilities are seen as drivers with performance, lap times, etc.”

On July 9, 2016, the return to motorcycle racing tracks reached a historic milestone. This date marks the launch of the PMR Cup, the first track-based motorcycle speed race exclusively for riders with limited mobility. It was a pivotal and defining event for the world of motorcycling and its evolution. In fact, it took three years for Stéphane Paulus to finally receive approval from the FFM. A genuine desire to expand motorcycle racing for people with reduced mobility is evident in the comments of those we interviewed, a sentiment supported by Laurent T., who says, “The more riders there are, the more they’ll be recognized, and the more it will become a legitimate category. In the French championships, there are a maximum of 15 riders; if there were twice as many, it would be a more exciting spectacle. In France, there are about fifteen of us, and internationally, about thirty. We’re a bit short on competitors to make it eye-catching for spectators and for the ‘disabled riders’ to be recognized as riders.” That’s why some riders, such as Benoît T., aspire to one day compete alongside ‘able-bodied’ riders. An ambition that seems to be coming to fruition when we ask the driver, “I’ve wanted to race with able-bodied drivers for years, and I’ve been told no, but this is the first year I should normally get the go-ahead.” Then, on August 6, 2022, Benoît T. became the first paraplegic rider to compete in a round of the French Endurance Championship, the Ultimate Cup Moto[6], alongside “able-bodied” riders. A feat that overturns the stigmas associated with disability. “The para-sports movement operates within a binary normal/disabled framework of almost ontological scope, making the ableist model a reference standard (Probst et al., 2016) that cannot be transcended” (Issanchou, Perera, 2020, p. 23). Yet today, moving beyond this is more than conceivable. Had he not fallen during the final laps, Benoît T. would have been third in the overall standings after two hours of fierce competition. A podium finish he narrowly missed but one that left a lasting impression. Through his feats, this extraordinary rider proves to us all that “no matter the situation, it’s skill that defines performance.”

Getting back on a motorcycle as a person with a disability: a difficult journey to navigate without the support and guidance of peers

When examining the process leading up to getting back on the bike, what first emerges from the various accounts is a sense of “fear,” “stress,” and “apprehension.” Through his metaphor, Emmanuel S. illustrates the challenge a paraplegic motorcyclist must overcome: “You see, they put that beam on the ground, and you have to ride across it for 5 meters. Easy! Well, the beam is on the ground, so it’s easy. Put that same beam 20 meters up, and it’s the same challenge, except you can’t afford to make a mistake. That’s what makes it complicated.” Unable to put a foot down, the rider faces the fear of falling or getting injured. That’s why the process of getting back in the saddle is complex. All of our interviewees were motorcyclists before the accident and had achieved total mastery of the machine. So for them, riding a motorcycle is child’s play, but without the use of their legs, Emmanuel S. notes that “mentally, it’s still tough. You can’t afford to fall.” Priolo and Milhabet describe this psychological process as follows: “Engaging in unsafe behavior inhibits the persuasive effects of fear appeals, whereas engaging in safe behavior enhances them” (2008, p. 207).

There is therefore a clear need for support, which seems essential when getting back on a motorcycle after an accident. According to Emmanuel S.: “Either you’re lucky and, let’s face it, have a strong support system—which isn’t the case for everyone—or you’re mentally tough, or both—which is the best of both worlds!” That’s why the PHS association offers personalized, specialized support to help individuals get “back in shape.” A relationship of trust is built over time. Having experienced this support himself, Jean-Pierre R. shares his thoughts: “They explain things to you, they put you at ease […] it builds your confidence.” Every member of the PHS mechanics team has a role. Laurent T., a mechanic on the team, emphasizes the safety of the activity and customizes the motorcycles according to each person’s needs and specificities. Benoît T. acts as an instructor and shares his experience as a professional rider. He is proof that it is possible to get back on a motorcycle. For his part, Emmanuel S. takes on the role of support person and mentally prepares the beginner by building their confidence: “It’s kind of my strong suit […] when we do introductory sessions, that’s where I like to step in; that’s where I usually manage to find the right words with people. Because I put myself in their shoes and I’m able to understand them… .” There are also “able-bodied” volunteers who assist with transferring the participant from their wheelchair to the motorcycle and who help with the rider’s departure and reception. At the same time, family and friends are also present throughout this journey. They can have a beneficial but also a detrimental influence on the individual. Indeed, some loved ones are against the idea of getting back on a motorcycle and adopt an attitude that undermines the participant’s confidence. While others encourage the individual in their decision-making, even going so far as to participate in the introductory session with them: “The day I got back on, he rode with me; we rode together” (Thomas V., speaking of his best friend). Thus, the PHS mechanical center team fosters a climate of trust to ensure the participant’s psychological comfort during their initiation. Human support, in the form of multi-faceted peer support, therefore complements technological aids to optimize the experience of returning to motorcycling. Above all, it is a “peer support” relationship that develops between the experienced rider and the novice (Durant, 2020, p. 8), taking the form of peer mentors with diverse and complementary experiences.

Conclusion

By examining the stories of six paraplegic men who were able to ride motorcycles again thanks to the PHS association, the accident appears to be the breaking point between a man and his passion: motorcycling. It marks the beginning of a personal ordeal that Benoît T. experiences as “a struggle and a challenge.” For most of them, the idea of ever getting back on a motorcycle was inconceivable, as Emmanuel S. tells us: “[…] your brain senses what’s possible and what isn’t. […] Because it was something that was absolutely impossible—no question about it. It was simply impossible.” However, Thomas V. held onto hope and couldn’t bring himself to give up on his passion: “[…] I used to tell myself that thanks to technology, advancements in equipment, and everything else, I always had it in my head that one day it would be possible.” In 2011, Stéphane Paulus, a pioneer of stunt riding in France, completed his first track runs 13 years after his accident. He thus became the first paraplegic man to ride a motorcycle again in France. An iconic figure in the sport, he gives hope to all people with reduced mobility, offering them the chance to reconnect with the passion buried within them since their accident.

It was primarily the use of technology that made it possible to adapt and make technical adjustments to the motorcycle. These are all former motorcyclists who became paraplegic following an accident; they draw on their experience and creativity to customize the motorcycle to each individual’s specific needs. Technology thus acts as a facilitator, making motorcycle tracks accessible to people with reduced mobility. A facilitator that nevertheless requires learning and technical mastery of the two-wheeled vehicle. When the individual possesses the skills required by the practice, we speak of embodiment. By embodying the dynamics of the motorcycle, “they delegate the technical aspect of riding to their bodily reflexes and the proprioception of the body-motorcycle-environment system […] Consequently, by becoming one with their motorcycle, the rider is able to delegate the technical aspects of riding to their subconscious, allowing them to detach slightly from the action and open themselves up to the sensations offered by the surrounding environment” (Vannier, 2020, p. 11). Nevertheless, getting back on a motorcycle is not that simple; it is a complex process that requires support.

Having had the opportunity to get back on a motorcycle, the team from the PHS mechanics department has gained track experience that they wish to share with enthusiasts. The complementary skills of Emmanuel S., Benoît T., and Laurent T. make the experience of getting back on a motorcycle unique. A relationship of “peer support”—in this case, multifaceted—develops between the participant and the PHS team. In this way, the organization fosters a genuine atmosphere of trust where the individual feels mentally ready to get back on a motorcycle.

It is also the story of riders who fought to carve out a place for themselves in their sport. Many of them have pushed the limits of bodies that were once restricted by motorcycle racing following their accidents. Benoît Thibal and Stéphane Paulus are proof of this. They have made a name for themselves with the general public by achieving extraordinary feats. Their accomplishments are a source of inspiration, challenge perceptions of disability, and, above all, prove that the unthinkable is achievable. We refer to them as “handi-capable” riders, leaving behind the limitations imposed by their disabilities.

Since 2016, when the PMR Cup was created, the sport of motorcycle racing has continued to grow. A small group of professional riders with disabilities, including Benoît T. and Stéphane Paulus, have had one goal in mind for the past few years: to compete against able-bodied riders. Their determination and their performance have proven their ambitions right, as on August 6, 2022, Benoît T. will compete in the Ultimate Cup Moto alongside able-bodied riders. This achievement marks a turning point for the world of motorcycling and disability. There seems to be no limit to how the sport can evolve. So, it’s fair to ask: in what new directions can the sport of motorcycling still develop?

All of the introductory courses offered by the PHS association are primarily intended for people with disabilities (those with upper or lower limb amputations, paraplegics, hemiplegics, etc.) who had experience riding motorcycles prior to their accident. Thanks in part to the achievements of Benoît T., who has completely upended the ableist model adopted by society, and to technological advancements, the world of motorcycling is moving toward a more inclusive perspective. The PHS team is constantly expanding the reach of these initiatives and promoting them on their social media and website. This makes them visible to the general public, which significantly contributes to making the sport more accessible and changing perceptions related to disability.

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[1] The Planète Handisport association, also known as PHS, aims to introduce people with disabilities to extreme sports. It also organizes trips and unique activities to offer original experiences tailored to people with reduced mobility. Each section is led by experienced instructors who enjoy sharing their passion in a relaxed atmosphere. Their activities are open to both able-bodied athletes and athletes with disabilities, and participants can join the programs alone or with family and friends.

[2] www.pole-mecanique.fr

[3] The Human Development Model – Process of Disability Production (HDM-PDP) is a conceptual model that aims to document and explain the causes and consequences of diseases, traumas, and other impairments to a person’s integrity or development. The model applies to all people with disabilities, regardless of the cause, nature, and severity of their impairments and disabilities.

[4] The International Network on the Process of Disability Production (RIPPH) is an internationally recognized nonprofit organization based in Quebec, Canada. (History of the Model – RIPPH)

[5] Portrait of Stéphane Paulus (2016) published on the website: le repaire des motards.com. Stéphane Paulus: a head full of ideas (lerepairedesmotards.com).

[6] The Ultimate Cup Moto is a championship featuring speed and endurance races on exceptional circuits throughout France.